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HISPC Phase 3 – 2008 – 2009

The first part of the third Phase began in April 2008 and ran through March 2009, ONC selected 40 states and 2 territories to participate in 7 specific topic- Collaboratives and to execute the collaborative strategies developed in Phase 2.

The 7 Collaborative Work Groups are:
  • Interstate Disclosure and Patient Consent Requirements (Massachusetts is Co Chair)
  • Consumer Education and Engagement (Massachusetts is Co Chair)
  • Consent Policy Options
  • Harmonizing State Privacy Law
  • Provider Education
  • Adoption of Standard Policies
  • Inter-organizational Agreements
Massachusetts HISPC was awarded participation on 2 Multi State Collaboratives as Co Chair of the Interstate Disclosure and Patient Consent Requirements Collaborative and Chair for the Consumer Education and Engagement Collaborative.
  • The Multi-State Interstate Disclosure and Patient Consent Requirements Project examined the environment where patient consent laws vary from state-to-state regarding when consent would and would not be required in order to disclose the patient’s PHI to a treating health care provider. With the complexity of state laws and the variation in interpretation of state laws, this Project was a challenge that demonstrated the inherent difficulty of knowing when a patient’s health information can be shared and when it cannot.
  • The Project established a model for identifying and resolving patient consent and information disclosure across states; the approach was scenario based with work products the describe the variation among the 11 participating states.
  • The Project has identified state statutes and regulations that govern when specific types of health information may be disclosed to a patient’s treating health care providers, whether in state or out of state.
  • The Project revealed that any given statutory and regulatory provision is often subject to varying interpretation. 
  • The project presented several options to reduce the variability among state laws and facilitate electronic health information exchange using both nationally-and state-driven approaches. These options were presented with recognition that it may be difficult and challenging to accomplish them.
The Final Reports:
  • MA-HISPC Multi State Interstate Disclosure and Patient Privacy Requirements Final Report, March 2009
  • MA-HIPSC Multi State Interstate Disclosure and Patient Privacy Requirement PowerPoint Summary, April 2009
  • The Multi-State Consumer Education and Engagement Collaborative Project, using the intimate knowledge of local populations, the Collaborative with 7 participating states, developed tools and strategies that will and can engage and educate the consumers in each state.  Of note, significant recognition was given to the need to rely on language and literacy-controlled materials specifically targeted to populations with known healthcare needs.  These state projects have already begun to serve as a testing ground, with results feeding back for ongoing updates and customized improvements.  In addition, the Collaborative defined high priority “common projects” that all 7 states will participate. Massachusetts was appointed the lead state for this Collaborative.  The Collaborative states all contributed to the common projects, along with the management of their state-specific projects.
The Collaborative Common Project Deliverables:
  • A glossary of HIT/HIE terms
  • Inventory matrix of existing HIE/HIT education and engagement materials
  • FAQs about HIT/HIE privacy and security
  • A summary document on risk and benefits of HIE
  • A summary document of patient rights under HIPPA
  • Guidelines for Engaging Consumers
  • Methodology for translating informational/educational documents into different literacy levels and languages
  • Guidelines for patient consent

 
 

Massachusetts Health Data Consortium - 460 Totten Pond Road - Suite 690 - Waltham, Massachusetts 02451 - 781.419.7800 - www.mahealthdata.org - Copyright 2010

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